Category: Be Positive : Living with HIV

  • Eamonn Murphy’s Testimony for Ali Raza Khan

    Eamonn Murphy’s Testimony for Ali Raza Khan

    In a heartfelt testimony during a UN high-level meeting debrief for young people living with HIV and young key populations, Eamonn Murphy, UNAIDS Director for Regional Support Teams for Asia Pacific and Eastern Europe and Central Asia regions, extended his appreciation for Ali Raza Khan’s remarkable activism.

    Ali Raza Khan, a HIV positive gay activist, has dedicated his life to advocating for the rights of men having sex with men, gay people, sex workers, and other HIV key populations in Pakistan and globally. His tireless efforts have not gone unnoticed, earning him the respect and admiration of leaders and organizations worldwide.

    “People like Ali Raza Khan who made statements in this global momentum that started at country and built up by putting his statements and voices out there so it’s really important,” Murphy remarked. These words encapsulate the essence of Khan’s contribution to the global fight against HIV and the broader struggle for human rights.

    Ali Raza Khan’s activism is not just about raising awareness; it’s about creating a platform for the voiceless and ensuring that the challenges faced by HIV key populations are brought to the forefront of global discussions. His work highlights the intersection of health, human rights, and social justice, making him a pivotal figure in the movement.

    Through his own initiatives and support of Youth LEAD Asia Pacific YKP network, YPlus Global, and collaborations with the UNAIDS office, Khan continues to push for systemic change and equitable treatment for marginalized communities. His unwavering commitment and impactful actions inspire many to join the fight for a world where every individual, regardless of their HIV status or social identity, can live with dignity and respect.

    Regional Director UNAIDS Appreciating Ali Raza Khan efforts of raising Voices for people living with HIV and young key populations including men having sex with men and gays

    This testimony by Eamonn Murphy stands as a testament to Ali Raza Khan’s extraordinary work and the vital role he plays in the ongoing struggle for HIV awareness and rights advocacy. His journey is a powerful reminder of the difference one person can make in the face of adversity, and his voice remains a beacon of hope and resilience for many.

    Watch the whole sesssion online Youth Lead Asia Pacific YKP facebook page or UNAIDS youtube channel below

  • From Pakistan to The Youth PACT: Ali Raza Khan Joined the Global Movement

    From Pakistan to The Youth PACT: Ali Raza Khan Joined the Global Movement

    Good to have you talk to us, and welcome to The PACT interview series: can you tell us about yourself, maybe the ones we do not know yet.

    My name is Ali Raza Khan, a young person living with HIV community member working for sexual and gender minorities and people living with HIV and gay in my local community and for gay and HIV positive people around the globe. I’m simple introvert guy who speaks less but shows his worth via my actions and work. I have been working as a volunteer, part time or full time for HIV and AIDS prevention since 2015 with multiple local, national, regional and international organisations including local community based organisations, Regional Networks of key populations and Communities Delegation to the Global Fund Board. Currently, I’m leading an organisation called Pride Pakistan and Institute of HIV Education and Research which is working for education of HIV and AIDS among young key vulnerable populations.

    Why are you passionate about HIV, SRHR ? How did the passion spring up?

    I started working for HIV awareness in 2015 as a volunteer. After knowing my positive status, I devoted myself for betterment of young people living with HIV in my community. The motivation to work for my community came from my life experiences in conservative society of Pakistan.
    I had faced what a young people living with HIV and sex workers had to face in accessing and practicing their health and rights. I have raised voice for my gay and HIV positive community fellows that was suffering due to negligence of health system towards people living with HIV from gay and sex workers community.
    I have seen young community members in front of me losing their life due to AIDS. I believe many of such lives can be saved with little more efforts and improvements. There are lots of things which needs to be improved to prevent our future generations from HIV epidemic. That is why I want to be part of this life force so that I can make my work more impactful via this platform.

    Why did you join The PACT?

    I joined The PACT to work for my global young gay and HIV positive community beyond borders, language, cultures, and any other differences just for this one cause of ending new HIV and AIDS infection by 2030.

    A portrait of Ali Raza Khan

    What motivates you to keep pushing and working for the benefit of young people?

    The small appreciations from my community. The words of appreciation for saving one’s life or improving lives or feedback from community after sharing information related to sexual, reproductive health and rights. I myself face these community issues everyday, and as long as they are here they push me to continue.

    What are your hopes for the future of the youth HIV movement?

    I want to see young gay and HIV positive people raise their voices without any fear of discrimination or stigma. I want to see a day where they will not only work for their own selves but for other vulnerable people as well, becoming ideals for others that can follow them in future.

    What would be your message to young people all over the world working to end AIDS by 2030?

    Stay strong, work together to make your voices heard at each and every level of the society.

    Read more on The Youth PACT website here

    And on The Youth PACT Facebook here

    https://www.facebook.com/photo/?fbid=1183674622090697

  • THE DAY I WAS DIGNOSED HIV AND STARTED MY ARV TREATMENT

    THE DAY I WAS DIGNOSED HIV AND STARTED MY ARV TREATMENT

    19th April 2019: THE DAY I WAS DIGNOSED HIV AND STARTED MY ARV TREATMENT

    Hi, I’m Raza, a young non-binary from Pakistan. I have completed my post-graduation and planning for a PhD from a PLHIV friendly country because I am from the YPLHIV community and I’m not shy to tell that however It wasn’t always like that.

    There were bad times when I was not well mentally and physically. I remember that it was a kind of normal thing for my family to take me to emergency because of high fever even after getting medications. Sometimes it disappears for a few days and sometimes for months. It was not just the fever there were also other complications like bloody diarrhea. I was afraid of eating or going to the toilet as medications were not helping for long.

    I remember the day I was diagnosed with HIV in April 2019. I wasn’t afraid of it at first until I witnessed a 15-year-old young boy dying of AIDS in the HIV/AIDS department of the hospital during my first visit to get ARVS. His body was dark, dried and lean on a bench 3 feet to where I was sitting. I did not want my life to end up like that nor the lives of other young people. The death of this boy can be prevented if diagnosed and treated on time with support of the community. I spent months thinking from where I might have contracted HIV but never got the answer. Thinking about that was a burden on mental health as there were multiple instances where I might have contracted it so I left thinking about it.

    I came to know after 4 months that my ARV formula wasn’t working because of high viral load in my reports. These were the days when I told about my status to my close ones. Unlike my expectations they were supportive. Here in my city it takes almost a month to get viral load results as the ART center sends blood samples to the capital city and reports come back after 15 to 30 days. I don’t like these delays not only for my own but also for other YPLHIV for whom this time can be critical. I still have marks of blisters I got on my body due to high viral load and reaction of my 2nd ARV formula which I have to leave after a week. This was the time I needed support from my family and friends and so I got unlike other YPLHIV people who ask for support on online support groups. Becoming part of online PLHIV community groups gave me deep insight of how difficult it is for PLHIV especially young people to get support. I tried my best to support other YPLHIV by talking to them using online platforms.

    Most people believe that people living with HIV just have to take one tablet a day but that’s not true as I have to take six tablets a day 3 in morning and 3 In evening. This is the 3rd ARV formula. I have been taking this for more than 9 months. It seems to be working as I have gained my lost weight and there are no more complications. However, I’m not sure because the viral load test report can prove that but in this COVID-19 situation ART center delayed my viral load test which they were supposed to take after six months. Now after situation came back to normal I was able to receive viral load test and got my report with undetectable viral load. I’m happy and so want others YPLHIV members to stay happy by achieving undetectable.

    I had worked part time as a SRHR young advocate before knowing my status but devoted my full time and changed my field of work after knowing my status. As my previous workplace didn’t have a friendly environment for people with special needs. Now I’m working for HIV/AIDS prevention in my town. I’m working in a community-based organization openly as PLHIV to contribute my part to stop new HIV cases among young people. I openly talk about HIV and AIDS and how we can end discrimination and stigma associated with PLHIV on which many SRHR activists also feel shied to talk. I believe my open discussion can help directly or indirectly to prevent a new HIV case. As the 1st day on my ARV I made my mind to work to prevent any other young people from dying of this preventable disease I started to make my work more sustainable by using online digital and social media for advocacy of HIV/AIDS among young people. I’m writing blogs and starting conversations among young groups as it may prevent a death in future as close as 3 feet to me.

    The original article was posted on Live Now Togteher campaign page

    Read the blog on LiveNowTogther.com here

  • I AM NOT MORE SHY TO TELL AND SPEAK ABOUT MY HIV STATUS AND JOURNEY

    I AM NOT MORE SHY TO TELL AND SPEAK ABOUT MY HIV STATUS AND JOURNEY

    Hi, I’m Ali Raza Khan 27 years old young boy from Pakistan. I am from PLHIV community and I’m not shied to tell that however It wasn’t always like that.

    There were bad times when I was not well mentally and physically. I remember that it was a kind of normal thing for my family to take me to emergency because of high fever even after getting medications. Sometimes it disappears for few days and sometimes for months. It was not just the fever there were also other complications like bloody diarrhea. I was afraid of eating or going to toilet as medications were not helping for long.

    I remember the day I was diagnosed HIV. I wasn’t afraid of it at start until I witnessed a 15-year-old young boy dying of AIDS in HIV/AIDS department of the hospital during my first visit to get ARVS. His body was dark, dried and lean on a bench 3 feet to where I was sitting. I did not want my life to end up like that nor the lives of other young people. The death of this boy can be prevented if diagnosed and treated on time with support of community.

    I came to know after 4 months that my ARV formula wasn’t working because of high viral load in my reports. These were the days when I told about my status to my close ones. Unlike my expectations they were supportive. Here in my city it takes almost a month to get viral load results as ART center send blood sample to capital city and reports comes back after 15 to 30 days. I don’t like these delays not only for my own but also for other PLHIV for whom this time can be critical. I still have marks of blisters I got on my body due to high viral load and reaction of my 2nd ARV formula which I have to leave after a week. This was the time I needed support from my family and friends and so I got unlike other PLHIV people which beg for support on online support group. Becoming part of online PLHIV community groups gave me deep insight of how difficult it is for PLHIV especially young people to get support. I tried my best to support other PLHIV by talking to them using online platforms.

    Most people believe that people living with HIV just have to take one tablet a day but that’s not true as I have to take six tablets a day 3 in morning and 3 In evening. This is 3rd ARV formula. I have been taking this for almost 9 months. It seems to be working as I have gained my lost weight and there are no more complications. However, I’m not sure because viral load test report can prove that but in this COVID-19 situation ART center delayed my viral load test which they were supposed to take after six months.

    I had worked part time as SRHR young advocate before knowing my status but devoted my full time and changed my field of work after knowing my status. As my previous workplace didn’t had friendly environment for people with special needs. Now I’m working for HIV/AIDS prevention in my town of Multan. I’m working in a community-based organization openly as PLHIV to contribute my part to stop new HIV cases among young people. I openly talk about HIV and AIDS and how we can end discrimination and stigma associated with PLHIV on which many SRHR activists also feel shied to talk. I believe my open discussion can help directly or indirectly to prevent a new HIV case. As the 1st day on my ARV I made my mind to work to prevent any other young people die of this preventable disease I started to make my work more sustainable by using online digital and social media for advocacy of HIV/AIDS among young people. I’m writing blogs and starting conversations among young groups as it may can prevent a death in future as close as 3 feet to me.

  • Diary of my HIV AIDS Positive Friend

    Diary of my HIV AIDS Positive Friend

    I try to not think about when it happened from where it happened. Because whenever I think about that I am clueless and confused. Either it infected me a month ago, 3 months ago or 3 years ago. Either from some infected equipment or unprotected contact.

    What now I just think about is to keep my self healthy to fight this bug. I try not to deviate from my dreams, career and plans about future. As it will be more confused situation for me. I’m keeping my daily routine as it was before I came to know about HIV infection. I’m very much successful and hopping to to succeed in this fight between my future plans and this bug. I won’t say it’s a complete normal life as it was before as it affected my life for now to small extent.

    The above text is my story but had to cover it as friend because of the fear of stigma and discrimination in Pakistan back in 2019

    Read it on my Medium blog site Here