HIV and hepatitis (B and C) can be asymptomatic for a long time and, if left untreated, can damage bodily functions. There is medication for HIV that allows a person to live a good life. There are effective medications for hepatitis C. With medication, HIV is not transmitted further. Hepatitis A and B viruses can be protected against with vaccination.
🤝 Testing is a human right.
HIV and STI testing should be easily available, without barriers or stigma. Services need to be developed so that people who need them but have not yet sought them out can find their way to these services.
In many European countries, immigrants without a residence permit are left without necessary treatment and services. Health and healthcare are also a right for undocumented individuals and those in similar situations!
❤️🩹 Stigma does not belong in health services.
It must be possible to talk about sexual health openly and respectfully with clients.
STIs are still often associated with shame, which can be a barrier to seeking testing. A professional, through their own attitude, can help a client overcome any feelings of shame related to STIs. It helps the client when the professional asks a few simple and open questions that give the client permission to share what has happened and what STI risks are associated with the client’s sexual practices.
Posters from the Right to HIV Testing project. You can find ready-made materials for celebrating testing week here >> hivpoint.fi/testausviikko
Eurooppalaisella testausviikolla halutaan muistuttaa varhaisen hiv-testauksen merkityksestä ja tähdätään helpommin saavutettaviin hiv- ja seksitautitestauspalveluihin
Miksi hiv- ja seksitautitestausta pitäisi edistää❔
🩷 Varhainen toteaminen edistää hyvinvointia. Testausta tehostamalla saadaan tartunnat hoidettua, tartuntaketjut katkaistua ja edistetään ihmisten seksuaalista hyvinvointia. Hiv ja hepatiitit (B ja C) voivat olla oireettomia pitkään ja hoitamattomina vaurioittaa elimistön toimintoja. Hiviin on olemassa lääkehoito, jonka avulla ihminen voi elää hyvää elämää. C-hepatiittiin on tehokkaita lääkkeitä. Lääkehoidolla hiv ei tartu eteenpäin. Hepatiitti A- ja B-viruksilta voi suojautua rokotuksella.
🤝 Testaus on ihmisoikeus. Hiv- ja seksitautitestausta tulisi olla saatavilla helposti, ilman kynnystä ja leimaamista. Palveluja on kehitettävä, jotta palvelujen piiriin löytävät ihmiset, jotka tarvitsevat niitä, mutta eivät ole vielä niihin hakeutuneet. Monissa Euroopan maissa ilman oleskelulupaa olevat maahan muuttaneet jäävät ilman tarvittavaa hoitoa ja palveluja. Terveys ja terveydenhuolto on myös paperittomien ja paperittomien kaltaisessa tilanteessa olevien ihmisten oikeus!
❤️🩹 Stigma ei kuulu terveyspalveluihin. Seksuaaliterveydestä pitää voida puhua avoimesti ja asiakasta kunnioittavasti. Seksitauteihin liittyy edelleen usein häpeää, joka voi olla este testeihin hakeutumiselle. Ammattilainen voi omalla suhtautumisellaan auttaa asiakasta pääsemään yli mahdollisesta seksitauteihin liittyvästä häpeän tunteesta. Asiakasta auttaa, kun ammattilainen esittää muutamia yksinkertaisia ja avoimia kysymyksiä, jotka antavat asiakkaalle luvan kertoa, mitä on tapahtunut ja millaisia seksitautiriskejä asiakkaan seksitapoihin liittyy.
Held in Geneva I participated in the Communities Delegation preparation meeting as member of the delegation ahead of the 53rd global fund board meeting. The importance of meeting is significance after the pull out of US from major global entities they were funding. This brings the The Global Fund for HIV TB and Malaria programs across the globe under threat as US is one of the major funder with its commitment to match one dollar for each two dollar contribution from other donors.
Digital technology is in many ways a new frontier that is increasingly part of our everyday lives making the perspectives, experiences and lessons learned from key population communities and civil society even more crucial to ground and inform this report. As a leading expert at the global, regional and national level, Iwas invited by UNAIDS consultant Robin Montgomery to have a conversation on the topic of AI for HIV. The conversation covered a number of issues (opportunities, challenges, lessons learned, etc) where I provided the critical input to define and chart the path forward.
How do digital health innovations [and by extension, AI] figure into your organization’s/network’s current and future-oriented strategies?
What are the top 3-4 concerns/risks that you have/your organization has/your communities have expressed about integrating AI technologies into service delivery across the HIV care cascade?
What opportunities do you see for the greater integration of AI tools into HIV prevention, treatment, care and support services and programs?
What is needed to build community capacity to engage in AI for HIV interventions?
What are 2-3 key considerations that you would like UNAIDS to reflect within the incoming Global AIDS Strategy?
Are there examples of good practice digital health/AI interventions that you would recommend us to look at?
In this year’s blog series, we present the writings of Hivpoint’s Health Buddies 2024 in which they reflect on their own journey in promoting sexual health.Health Buddies spread knowledge about sexual rights and sexual health including HIV and other STIs in migrant and refugee communities. Let us present to you our wonderful Health Buddy Ali Raza Khan.
I am Ali Raza Khan, an HIV positive gay activist from Pakistan and a refugee in Finland. In Pakistan, working for gay rights and HIV awareness comes with significant risks.
As an activist and the founder of PridePakistan.org, I faced constant threats and discrimination with increasing conservative societal norms and legal challenges. It was dangerous to advocate openly for sexual and reproductive health and rights (SRHR) of gay men.
If you are an HIV positive refugee in Finland, it’s important that you have access to essential healthcare and support services. I have written down some key points to help you navigate through possible challenges you might face.
My journey from Pakistan to Finland was not easy but Hivpoint’s Health Buddy program helped me to continue working for HIV positive community members in Finland. That is why I created this little guide based on my experience for HIV positive refugees in Finland.
1. Disclosure of HIV Status to Authorities
As a refugee, you should disclose your HIV status at your first interaction with authorities even though you might feel afraid because of discrimination or stigma.
It is essential to tell about your HIV status so your treatment will continue or it will be started as soon as possible.
I have learned that when you talk about HIV status at one immigration camp, the information is not shared to other staff members. That is why you have to tell about your HIV status in each new camp.
2. Get Connected to Hivpoint and Positiiviset ry HivFinland
People living with HIV do not have to deal only with HIV but also with societal and internal stigma. Therefore, it is vital to tell the authorities and your nurse if you have psychological needs.
Hivpoint and Positiiviset both have regular activities and program for people living with HIV. There you can meet with other HIV positive individuals to discuss everyday things. I find peer support very helpful during my process.
As an HIV positive individual, I always wanted to discuss HIV related issues with other people living with HIV. Peer support has helped me dealing with internal and societal stigma.
At the street chalk event 2024 organized by Positiiviset ry, Ali draws and makes art about human rights, equality and hope.
3. Getting tested for Sexually Transmitted Infections (STIs)
Even if your HIV is undetectable, you can still get other STIs when having sex. Ask your nurse or doctor to get tested for STIs. It would be good to get tested if you’ve had unprotected sex (sex without condom or dental dam) or condom has broken.
You could get tested for STIs at Hivpoint’s free and confidential STI testing services. In addition, Pro-tukipiste offers services for those who are selling sexual services.
Apart from getting essential health and HIV services on time, you might also have some other needs. You can get help from Hivpoint and other associations.
Hivpoint is offering counselling and leisure activities for people living with HIV, and those can keep you to engage in healthy way on ground. In addition, you can participate in Positiiviset gatherings and activities for HIV positive people.
Who to contact?
You can join Pride Helsinki community’s closed refugee support groups. There you will get connected to other queer refugees in Finland and participate in queer and LGBTQI+ events.
It is crucial for your physical and mental health to continue your HIV treatment without a gap. In addition, it would be good for you to participate in association activities. It will help your mental health during the long process of your refugee hearings.
Whether you are in a big city or in distant area it is essential to contact with Hivpoint and other associations. You could do it online or face to face. If you came to Finland alone, you don’t have to be alone anymore.
Via these platforms mentioned above you can find similar people who can understand you. I recommend that you never hesitate to contact and get help from Hivpoint.
Ali visiting Hivpoint´s office at Kalasatama 2024.
Ali Raza Khan The writer is one of Hivpoint’s Health Buddies 2024
The orginal article is posted on Hivpoint.fi website, read more on their website here:
In this year’s blog series, we present the writings of Hivpoint’s Health Buddies 2024 in which they reflect on their own journey in promoting sexual health.
Health Buddies spread knowledge about sexual rights and sexual health, including HIV and other STIs, in migrant and refugee communities. Let us present to you our wonderful Health Buddy Ali Raza Khan.
My name is Ali Raza Khan, and I am an HIV-positive gay activist from Pakistan. My journey from Pakistani society to Finnish society has been one important chapter of my life.
As the founder of Pride Pakistan, I have been advocating for the health and rights of the LGBTQIA+ community, particularly gay men in Pakistan. However, due to threats to my life and discrimination based on my HIV status, I sought refuge in Finland where I am continuing my activism.
Refugees’ access to HIV, STI and SRHR services in Finland
Upon arriving in Finland, I found myself in a refugee center in a few days. There I first heard about Hivpoint, an organization dedicated to HIV awareness, advocacy, and sexual and reproductive health and rights in Finland.
One of Hivpoint’s volunteers was sharing informative pamphlets which motivated me to continue my HIV and SRHR advocacy work here in Finland. I also realized the gaps that refugees face in accessing HIV, other STI and SRHR services in Finland, particularly living away from major towns.
Health Buddy program helped me to overcome internal Discrimination and Trauma
Determined to continue my activism, I applied and got accepted to the Health Buddy program at Hivpoint. The program provided me with an opportunity to continue working openly for the rights and health of gay men.
Coming from a conservative society where I had to be cautious about everything I said and did, the Health Buddy program had a positive impact on my mental health.
It provided me an opportunity to exercise my HIV identity and gender expression openly in a new society.
The most important thing in the Health Buddy program was that I was doing activities with the support and assistance of Finnish expert colleagues that have been working for broader SRHR issues in Finland for years.
Learnings and experiences from organizing Health Buddy workshops
As a part of the Health Buddy program, I have organized more than five online and live discussions focusing on HIV, other STIs and SRHR awareness. There have been more than 50 people from diverse backgrounds participating in those sessions. This experience was very helpful for me to move ahead in my career path in a new country.
Through the Health Buddy training and interaction with participants of my sessions, I came across various perspectives of queer individuals, refugees, South Asians, students, and others regarding HIV and SRHR in Finland.
Through these workshops, I increased knowledge on safer sex, awareness of HIV and other STIs, consent, sexual rights and gender identity. In addition, I shared information about the availability of treatments and services related to STIs, PEP, PrEP, and contraceptives.
In the workshops, the participants got to know different condoms, lubricants and dental dams.
During the workshops, I realized that especially refugee community members still don’t have access to necessary basic information about HIV, other STIs, testing and treatment.
My message is to continue speaking about HIV
Despite the advancements and availability of HIV treatment, there is still stigma and discrimination towards HIV-positive individuals. It often leads to HIV-positive people not sharing their experiences or speaking about HIV with their communities.
It is crucial to continue speaking, sharing information and awareness about HIV, other STIs and LGBTQIA+ communities to end this stigma.
Ali Raza Khan The writer is one of Hivpoint’s Health Buddies 2024.
Ali Raza Khan, an HIV-positive gay activist from Pakistan, shares their journey as a Health Buddy 2024.
Recently Asia Pacific Coalition of Men Having Sex with Men or APCOM had asked me for small interview on World AIDS Day 2024. Below is my discussion with them.
Brief bio of yourself
Ali Raza Khan is a young HIV positive gay activist from Pakistan working for the community since 2015, focused on SRHR, HIV, AIDS prevention and peace. He has worked with multiple local, national & international organizations for the rights of people living with HIV, Men having sex with men and gays. As founder Pride Pakistan he is currently working for men having sex with men gay and other queer community in Pakistan. He is serving as member Communities’ delegation to the board of the Global Fund, member UNAIDS Advisory Group on Monitoring the 30-80-60 targets and co-lead partnership in The PACT. He is laureate HIV HERO Award 2021 by APCOM.
A quotation on the theme of this year’s WAD theme and what it means to you and your community
For me and my gay community, taking a right path is a path of decriminalizing men having sex with men and gay people in Pakistan. It is the only and one path that can help to eradicate new HIV infections and achieve UNAIDS 95 95 95 goal.
Please answer the following questions (try to stick to two paragraphs):
1 – What is the situation of people living with HIV in your country?
People living with HIV in Pakistan are facing enormous challenges due to slow progress towards reducing stigma and discrimination during treatment when visiting health care facilities. People from men having sex with men community and gay have to face it worse way as they have to get denial of treatments, discrimination from health care providers when accessing their HIV health care services. We hear on daily basis the special HIV clinics councilors rather than providing counseling on HIV treatment use derogatory remarks each time any HIV positive individual from MSM and gay community visit them. Due to denial of treatment to HIV community members I estimate hundreds of community members have died so far. Apart from this many other community members are unable to bear stigma and psychological torture from government health care facilities resulting in increase in lost to follow up.
It not only is coming from health care providers only but from work spaces, society and other day to day interactions. We are seeing even key population members held in prison being raped and killed. (1) It becomes more traumatizing for gay community and male sex workers that are unable to openly show their identities in public forums online due to torture and arrest from security agencies torturing gay people on online gay platforms and on ground.
On the other hand, there are increases in new HIV cases due to deteriorating health care system and pressure on healthcare facilities. Quack doctors also contributing into this along with societal practices. We see new and new outbreaks of HIV infections in general public. Such as a few days ago in Multan home town hospital dozens of kidney patients got HIV during negligence in dialysis treatment. (2)
The overall there is huge societal stigma and discrimination based on criminalizing laws all contributing towards increased cases of HIV infections in MSM and gay community. That is why I believe decriminalization of same sex and gay community is the only solution to curb the new HIV infections and achieve 95 95 95 targets.
2 – What and how are you/your organization doing to address these challenges?
We are working on empowering community by raising awareness around MSM & Gay community issues and providing capacity building trainings around their health and rights. We have been organizing focus groups discussions, safe space gathering and capacity building sessions benefiting thousands of people so far.
We are doing advocacy online and offline for the rights of men having sex with men and gay people. We are working with partners global to use diplomatic voice and influence to work around decriminalizing. It is important to bring the voice of gay community members on spotlight and in visibility that never gets highlighted despite the fact that MSM and gay people are one of the most vulnerable key populations.
3 – What support do you/your organization need?
With decreasing funding for community work and restrictions and crack down by authorities for organizations working for men having sex with men, gay and queer community it is becoming difficult for gay organizations to operate. Our organization is also struggling with sustainable funds for the running cost of our functions and salaries. Making most of our members working on volunteer basis. We need essential running cost to ensure uninterrupted work for our Pride Pakistan community.
4 – Anything else you wish to add?
I believe the work we are doing for capacity building and empowerment of men having sex with men and gay people is difficult with a lot of hurdles coming ahead on our way but we will continue to do so because that is the rights path. I wish one day other stakeholders and the government will also be able to take that rights path.
Contributor: Ali Raza Khan HIV HERO Award recipient 2021
Ali Raza Khan is a young HIV positive gay activist from Pakistan working for the community since 2015, focused on SRHR, HIV, AIDS prevention and peace. He has worked with multiple local, national and international organizations for the rights of people living with HIV, men having sex with men and gays. As a founder of Pride Pakistan, he is currently working for men having sex with men gay and other queer communities in Pakistan. He is serving as member Communities’ delegation to the board of the Global Fund, member UNAIDS Advisory Group on Monitoring the 30-80-60 targets and co-lead partnership in The PACT. He is the winner of the HIV HERO Award 2021 by APCOM.
What is the situation of people living with HIV in your country?
People living with HIV in Pakistan are facing enormous challenges due to slow progress towards reducing stigma and discrimination during treatment when visiting health care facilities. People from the group of men having sex with men and gay community have to face it in a worse way as they have to get denial of treatments, discrimination from health care providers when accessing their HIV health care services. On a daily basis, the special HIV clinics councilors rather than providing counseling on HIV treatment use derogatory remarks each time any HIV positive individual from MSM and gay community visits them. Due to denial of treatment to HIV community members, I estimate hundreds of community members have died so far. Apart from this, many other community members are unable to bear stigma and psychological torture from government health care facilities resulting in increase in lost to follow up.
It not only is coming from health care providers only, but also from work spaces, society and other day to day interactions. We are seeing even key population members held in prison being raped and killed.
1. It becomes more traumatizing for gay community and male sex workers that are unable to openly show their identities in public forums online due to torture and arrest from security agencies torturing gay people on online gay platforms and on ground.
On the other hand, there are increases in new HIV cases due to deteriorating health care systems and pressure on healthcare facilities. Quack doctors also contribute to this along with societal practices. We see new and new outbreaks of HIV infections in the general public. Such as a few days ago in Multan home town hospital dozens of kidney patients got HIV during negligence in dialysis treatment.
2. Overall there is huge societal stigma and discrimination based on criminalizing laws all contributing towards increased cases of HIV infections in MSM and gay community. That is why I believe decriminalization of the same sex and gay community is the only solution to curb the new HIV infections and achieve 95 95 95 targets.
What and how are you/your organization doing to address these challenges?
We are working on empowering the community by raising awareness around men having sex with men and gay community issues and providing capacity building training around their health and rights. We have been organizing focus groups discussions, safe space gathering and capacity building sessions benefiting thousands of people so far.
We are doing advocacy online and offline for the rights of men having sex with men and gay people. We are working with partners globally to use diplomatic voice and influence to work around decriminalization. It is important to bring the voice of gay community members to the spotlight and in visibility that never gets highlighted, despite the fact that men having sex with men and gay people are one of the most vulnerable key populations.
What support do you/your organization need?
With decreasing funding for community work and restrictions and crack down by authorities for organizations working for men having sex with men, gay and queer communities, it is becoming difficult for gay organizations to operate. Our organization is also struggling with sustainable funds for the running cost of our functions and salaries. Making most of our members working on a volunteer basis. We need essential running costs to ensure uninterrupted work for our Pride Pakistan community.
Anything else you wish to add?
I believe the work we are doing for capacity building and empowerment of men having sex with men and gay people is difficult with a lot of hurdles coming ahead on our way but we will continue to do so because that is the right path. I wish one day other stakeholders and the government will also be able to take that right path. If you want to support my work feel free to reach me through AliRazakhan.com
Read the article on Asia Pacific Coalition of Men Having Sex with Men APCOM Website Here
Exploring Financial Data as a Proxy for Monitoring Community-Led HIV Response
This discussion focuses on the use of financial data to monitor the effectiveness of community-led HIV response efforts, specifically in relation to the 30-18-60 targets. The conversation builds upon a previous discussion in March, where Deepak presented initial findings on using financing data for monitoring. This session delves deeper into the results, tracking methods, and potential avenues for using financial data as a proxy measure for the 30-18-60 targets.
Timeline and Financial Flows
Deepak begins by outlining the timeline of monitoring financial flows through community-led HIV response. He highlights key milestones, including:
2021: National assessments were pending, with no differentiation between community-based and facility-based modalities.
2022: Six pilot projects provided valuable insights into resource tracking for community-led response, leading to the development of guidelines and updates to the UNAIDS spending assessment (NASA) framework.
2024: Several countries began implementing community-led response resource tracking at a micro level.
2025 and beyond: The goal is to provide standalone resource tracking modules for communities.
Deepak then presents data on international funding channeled to communities, showing a decline from 31% in 2013 to 25% in 2023. He emphasizes the lack of data on domestic financing and the need for disaggregation by community-led organizations (CLOs) versus other civil society organizations (CSOs).
NASA Dimensions and Vectors
Deepak explains the three dimensions of the NASA framework:
Financing: Tracks funding sources, entities, schemes, and fees.
Provisioning: Tracks service providers and production factors.
Consumption: Tracks spending categories, service delivery modalities, and beneficiary populations.
He then presents data on the percentage of funding channeled through community-based and home-based service delivery modalities, highlighting a decline from 17% to 8% over the years. This data is based on 17 countries and should be interpreted with caution due to variations in reporting across regions and years.
Pilot Projects and Lessons Learned
Deepak discusses the six-country pilot project on community-led resource tracking, which aimed to:
Track community-led organizations’ own resource use.
Include non-monetary contributions, such as volunteer time and in-kind donations.
The pilots helped shape guidelines for resource tracking and highlighted the need to consider both CLOs and other CSOs in the tracking process.
NASA Implementation and Data Collection
Deepak describes the implementation of a full NASA in Pakistan, which included:
Mapping and screening of CSOs and CLOs.
Self-administered questionnaires for identified CLOs.
Virtual interviews and data collection using NASA templates.
Valuation of non-monetary contributions, such as volunteer time and donated goods.
The Pakistan NASA revealed that almost 80% of funding for community-led organizations came from international sources, with a small proportion from domestic financing. The data also showed that a significant portion of the funding was directed towards prevention services for key populations.
Future Directions and Next Steps
Deepak outlines the future direction of community-led resource tracking, including:
Expanding the use of standalone resource tracking modules for communities.
Conducting NASA assessments in more countries, with a goal of reaching 30 countries by the end of 2026.
Further disaggregating data to track funding through both CLOs and CSOs.
The discussion concludes with a focus on the importance of aligning resource tracking with costing guidelines for community-led response. Participants emphasize the need for both financial and non-financial data to advocate for increased funding and support for community-led service delivery. The group acknowledges the challenges of data collection, particularly for smaller organizations, and the need for capacity building in record-keeping.
Artists and scientists have worked together to create pieces of art now on display in Munich, Germany in conjunction with the International AIDS Conference. The exhibition, titled HIV Science As Art, was conceived by co-curators Jessica Whitbread and Daniel Cordner. It follows in the footsteps of their 2023 show that was on display a year ago during the IAS Conference on HIV Science in Brisbane Australia.
The art will be for sale and all proceeds will be used to support community-based HIV programs in Eastern Europe, Central Asia, and Africa. But the impact of the show extends beyond raising money for worthwhile organizations. The exhibition also challenges viewers to think more deeply about important biomedical and social issues.
One artist/scientist pair worked together to create a piece on vaccine hesitancy. Charles Ryan Long is a Chicago-based artist and long-time HIV/AIDS activist. He partnered with Dr. Heidi Larson, a professor at the London School of Hygiene and Tropical Medicine and founder of the Vaccine Confidence Project. Their piece is entitled, “The Roots of (dis)Trust.”
Khairullah Rahim, an artist based in Singapore, collaborated with Ali Raza Khan, an HIV activist in Pakistan. Their piece, “Penjaga Hutan Batu (Guardian of the Stone Jungle),” is a short video ostensibly about pigeons. But Khairullah noted that the pigeons represent so much more. These birds often are vilified as carriers of disease. Too often, he remarked, people living with HIV are similarly vilified.
Both artists remarked that the collaborations with their science partners grew very organically. Long commented that when he was speaking with Dr. Larson about her work on vaccine hesitancy, the idea came quickly. “This is about trust,” he said. “It came to me rather easily and then it was just about how to transfer that idea.”
Rahim had similar thoughts about his collaboration. The process, “was very spontaneous. We wanted to see where the experimentation would bring us. There was no very clear end product that we were interested in.”
The exhibition has been supported by the pharmaceutical company ViiV Healthcare and Münchner Aids-Hilfe, an organization supporting people living with HIV in the Munich region since 1984. Works of art are on display at Brainlab, Olof-Palme-Straß 9 in Munich through July 25, 2024. The exhibition is open to the public daily from 10:00 AM until 7:00 PM local time.
Read more on original article on Forbes website here
It was an honor to be invited by the UNICEF-led Global Partnership for Adolescents and Young Key Populations (Global ayKP Partnership) to speak at their recent event. The topic, “Connectedness & Community,” resonates deeply with the work we are doing on the ground in Pakistan for children and young people living with HIV and other vulnerable key populations, including gays, MSM (men who have sex with men), and sex workers. Here’s a summary of the insights I shared during the session.
At HIV Voices, we define ourselves as a youth-led initiative working for young people living with HIV and adolescents from key populations. Our approach leverages digital and innovative methods to reach individuals who are often difficult to engage due to their circumstances and locations in Pakistan. Our group comprises a diverse array of young people dedicated to spreading awareness about HIV, prevention methods, and addressing the unique challenges we face, including security concerns and the impact of climate change.
Engagement and Empowerment
One of our core activities involves ensuring that adolescent and young key population (ykp) voices are heard. This includes:
Mobilizing our members
Conducting capacity-building training sessions
Utilizing various platforms and methods available on the ground
Making our voices heard at national and global levels through letter and story campaigns, particularly on digital and social media platforms.
Fostering Reproductive Health and Rights
We place significant emphasis on the reproductive health and rights of adolescents and young girls. Our efforts are not just about HIV prevention but also about creating a safe space where key populations can voice their concerns and work together to tackle issues that affect their well-being.
Connectedness as a Core Theme
The theme of connectedness is at the heart of our work, especially in a conservative country like Pakistan, where key populations are criminalized, and safe spaces are scarce. We often face pressure from various security-related entities and other stakeholders, which can hinder our efforts. However, understanding and navigating these conditions is our strength. As young people and peer mentors, we know how to deal with the issues we encounter on the ground, ensuring that young people from key populations and other stakeholders remain connected and that our voices are heard.
Addressing Interconnected Issues
When working with vulnerable key populations, we sometimes overlook interconnected issues. Our programs and activities aim to bridge this gap by raising awareness and fostering collaboration among different groups. For example, we’ve facilitated exercises that help participants understand how issues affecting one key population are linked to those of another, promoting a more unified approach to addressing these challenges.
A Message of Empowerment
Allow me to share a powerful message from Aslam, a young man living with HIV and a member of our group, Young Positive People of Pakistan:
“Hello everyone, my name is Aslam, and I’m a young man living with HIV. When I was diagnosed through a community-based organization working for key populations, I felt the need for additional support and a desire to contribute to my community. Connecting with Young Positive People of Pakistan not only helped me feel supported but also empowered me in navigating HIV-related systems. Since becoming a member, I have expanded my knowledge about the global fund process in Pakistan, learned about the contributions of various stakeholders, and represented young PLHIV (people living with HIV) on national and international platforms. This involvement has enabled me to address our community’s issues effectively and advocate for our rights.”
The work we do on the ground, driven by the theme of connectedness, is vital. It’s crucial for global organizations and partnerships to continue supporting these efforts at a global level. The empowerment and collaboration of young key populations are essential to creating an inclusive and effective response to HIV. Thank you to the Global Partnership for Adolescents and Young Key Populations for providing this platform and for recognizing the importance of our collective efforts.
Good to have you talk to us, and welcome to The PACT interview series: can you tell us about yourself, maybe the ones we do not know yet.
My name is Ali Raza Khan, a young person living with HIV community member working for sexual and gender minorities and people living with HIV and gay in my local community and for gay and HIV positive people around the globe. I’m simple introvert guy who speaks less but shows his worth via my actions and work. I have been working as a volunteer, part time or full time for HIV and AIDS prevention since 2015 with multiple local, national, regional and international organisations including local community based organisations, Regional Networks of key populations and Communities Delegation to the Global Fund Board. Currently, I’m leading an organisation called Pride Pakistan and Institute of HIV Education and Research which is working for education of HIV and AIDS among young key vulnerable populations.
Why are you passionate about HIV, SRHR ? How did the passion spring up?
I started working for HIV awareness in 2015 as a volunteer. After knowing my positive status, I devoted myself for betterment of young people living with HIV in my community. The motivation to work for my community came from my life experiences in conservative society of Pakistan. I had faced what a young people living with HIV and sex workers had to face in accessing and practicing their health and rights. I have raised voice for my gay and HIV positive community fellows that was suffering due to negligence of health system towards people living with HIV from gay and sex workers community. I have seen young community members in front of me losing their life due to AIDS. I believe many of such lives can be saved with little more efforts and improvements. There are lots of things which needs to be improved to prevent our future generations from HIV epidemic. That is why I want to be part of this life force so that I can make my work more impactful via this platform.
Why did you join The PACT?
I joined The PACT to work for my global young gay and HIV positive community beyond borders, language, cultures, and any other differences just for this one cause of ending new HIV and AIDS infection by 2030.
A portrait of Ali Raza Khan
What motivates you to keep pushing and working for the benefit of young people?
The small appreciations from my community. The words of appreciation for saving one’s life or improving lives or feedback from community after sharing information related to sexual, reproductive health and rights. I myself face these community issues everyday, and as long as they are here they push me to continue.
What are your hopes for the future of the youth HIV movement?
I want to see young gay and HIV positive people raise their voices without any fear of discrimination or stigma. I want to see a day where they will not only work for their own selves but for other vulnerable people as well, becoming ideals for others that can follow them in future.
What would be your message to young people all over the world working to end AIDS by 2030?
Stay strong, work together to make your voices heard at each and every level of the society.
19th April 2019: THE DAY I WAS DIGNOSED HIV AND STARTED MY ARV TREATMENT
Hi, I’m Raza, a young non-binary from Pakistan. I have completed my post-graduation and planning for a PhD from a PLHIV friendly country because I am from the YPLHIV community and I’m not shy to tell that however It wasn’t always like that.
There were bad times when I was not well mentally and physically. I remember that it was a kind of normal thing for my family to take me to emergency because of high fever even after getting medications. Sometimes it disappears for a few days and sometimes for months. It was not just the fever there were also other complications like bloody diarrhea. I was afraid of eating or going to the toilet as medications were not helping for long.
I remember the day I was diagnosed with HIV in April 2019. I wasn’t afraid of it at first until I witnessed a 15-year-old young boy dying of AIDS in the HIV/AIDS department of the hospital during my first visit to get ARVS. His body was dark, dried and lean on a bench 3 feet to where I was sitting. I did not want my life to end up like that nor the lives of other young people. The death of this boy can be prevented if diagnosed and treated on time with support of the community. I spent months thinking from where I might have contracted HIV but never got the answer. Thinking about that was a burden on mental health as there were multiple instances where I might have contracted it so I left thinking about it.
I came to know after 4 months that my ARV formula wasn’t working because of high viral load in my reports. These were the days when I told about my status to my close ones. Unlike my expectations they were supportive. Here in my city it takes almost a month to get viral load results as the ART center sends blood samples to the capital city and reports come back after 15 to 30 days. I don’t like these delays not only for my own but also for other YPLHIV for whom this time can be critical. I still have marks of blisters I got on my body due to high viral load and reaction of my 2nd ARV formula which I have to leave after a week. This was the time I needed support from my family and friends and so I got unlike other YPLHIV people who ask for support on online support groups. Becoming part of online PLHIV community groups gave me deep insight of how difficult it is for PLHIV especially young people to get support. I tried my best to support other YPLHIV by talking to them using online platforms.
Most people believe that people living with HIV just have to take one tablet a day but that’s not true as I have to take six tablets a day 3 in morning and 3 In evening. This is the 3rd ARV formula. I have been taking this for more than 9 months. It seems to be working as I have gained my lost weight and there are no more complications. However, I’m not sure because the viral load test report can prove that but in this COVID-19 situation ART center delayed my viral load test which they were supposed to take after six months. Now after situation came back to normal I was able to receive viral load test and got my report with undetectable viral load. I’m happy and so want others YPLHIV members to stay happy by achieving undetectable.
I had worked part time as a SRHR young advocate before knowing my status but devoted my full time and changed my field of work after knowing my status. As my previous workplace didn’t have a friendly environment for people with special needs. Now I’m working for HIV/AIDS prevention in my town. I’m working in a community-based organization openly as PLHIV to contribute my part to stop new HIV cases among young people. I openly talk about HIV and AIDS and how we can end discrimination and stigma associated with PLHIV on which many SRHR activists also feel shied to talk. I believe my open discussion can help directly or indirectly to prevent a new HIV case. As the 1st day on my ARV I made my mind to work to prevent any other young people from dying of this preventable disease I started to make my work more sustainable by using online digital and social media for advocacy of HIV/AIDS among young people. I’m writing blogs and starting conversations among young groups as it may prevent a death in future as close as 3 feet to me.
The original article was posted on Live Now Togteher campaign page
Hi, I’m Ali Raza Khan 27 years old young boy from Pakistan. I am from PLHIV community and I’m not shied to tell that however It wasn’t always like that.
There were bad times when I was not well mentally and physically. I remember that it was a kind of normal thing for my family to take me to emergency because of high fever even after getting medications. Sometimes it disappears for few days and sometimes for months. It was not just the fever there were also other complications like bloody diarrhea. I was afraid of eating or going to toilet as medications were not helping for long.
I remember the day I was diagnosed HIV. I wasn’t afraid of it at start until I witnessed a 15-year-old young boy dying of AIDS in HIV/AIDS department of the hospital during my first visit to get ARVS. His body was dark, dried and lean on a bench 3 feet to where I was sitting. I did not want my life to end up like that nor the lives of other young people. The death of this boy can be prevented if diagnosed and treated on time with support of community.
I came to know after 4 months that my ARV formula wasn’t working because of high viral load in my reports. These were the days when I told about my status to my close ones. Unlike my expectations they were supportive. Here in my city it takes almost a month to get viral load results as ART center send blood sample to capital city and reports comes back after 15 to 30 days. I don’t like these delays not only for my own but also for other PLHIV for whom this time can be critical. I still have marks of blisters I got on my body due to high viral load and reaction of my 2nd ARV formula which I have to leave after a week. This was the time I needed support from my family and friends and so I got unlike other PLHIV people which beg for support on online support group. Becoming part of online PLHIV community groups gave me deep insight of how difficult it is for PLHIV especially young people to get support. I tried my best to support other PLHIV by talking to them using online platforms.
Most people believe that people living with HIV just have to take one tablet a day but that’s not true as I have to take six tablets a day 3 in morning and 3 In evening. This is 3rd ARV formula. I have been taking this for almost 9 months. It seems to be working as I have gained my lost weight and there are no more complications. However, I’m not sure because viral load test report can prove that but in this COVID-19 situation ART center delayed my viral load test which they were supposed to take after six months.
I had worked part time as SRHR young advocate before knowing my status but devoted my full time and changed my field of work after knowing my status. As my previous workplace didn’t had friendly environment for people with special needs. Now I’m working for HIV/AIDS prevention in my town of Multan. I’m working in a community-based organization openly as PLHIV to contribute my part to stop new HIV cases among young people. I openly talk about HIV and AIDS and how we can end discrimination and stigma associated with PLHIV on which many SRHR activists also feel shied to talk. I believe my open discussion can help directly or indirectly to prevent a new HIV case. As the 1st day on my ARV I made my mind to work to prevent any other young people die of this preventable disease I started to make my work more sustainable by using online digital and social media for advocacy of HIV/AIDS among young people. I’m writing blogs and starting conversations among young groups as it may can prevent a death in future as close as 3 feet to me.
